To immediately and effectively heighten awareness
on the importance of expanded newborn screening
and its availability and necessity for every newborn.
To create, promote and facilitate legislation
which will mandate expanded newborn screening
for all fifty states.
To raise funds through promotional activities and sales
to support children and families affected with GA1
and other OA’s (organic acidemia metabolic disorders) through the creation of
provisional support programs
(including food, vitamin and emotional support efforts.)
